Taking action

Hypopara Views

{{vid.title}}
{{vid.length}}

Get your questions answered

It is important to play an active role and partner with your healthcare team in finding the best path forward. In dealing with your condition, it is very important to tell your doctors all of your symptoms. By fully describing all of your symptoms, you can help your doctors identify the condition that is causing them.

WHAT TO ASK YOUR DOCTOR ABOUT YOUR DIAGNOSIS


  • What is the cause of my low blood calcium (hypocalcemia)?
  • What tests will you do to confirm that I have hypoparathyroidism?
  • Are all of my parathyroid glands missing? (if caused by surgery)
  • Is the cause of my hypoparathyroidism genetic?
      -   If so, should my family be tested?
  • Do you have other patients with hypoparathyroidism?
DOWNLOAD PDF

WHAT TO ASK YOUR DOCTOR ABOUT MANAGING YOUR CONDITION


  • What blood calcium level will you target for me?
  • How often will you check my blood calcium level?
  • What is the role of parathyroid hormone (PTH)?
  • What is the goal of treatment?
      -   What are the long-term goals for me?
  • Why do I get neuromuscular symptoms? [for example, twitching, cramping, or abnormal excitability of nerves and muscles causing leg or arm spasms (tetany)]
  • What other types of symptoms should I watch for?
  • If I experience symptoms, what should I do to get my levels back under control? What are the signs that my symptoms require emergency attention?
  • If I have a severe reaction and need emergency care, what should I tell the emergency staff?
  • What is the importance of vitamin D, and what is activated vitamin D?
  • Is it necessary to monitor my phosphate and vitamin D levels?
  • Should I modify my diet?
DOWNLOAD PDF

WHAT TO ASK YOUR DOCTOR ABOUT YOUR DIAGNOSIS

  • What is the cause of my low blood calcium (hypocalcemia)?
  • What tests will you do to confirm that I have hypoparathyroidism?
  • Are all of my parathyroid glands missing? (if caused by surgery)
  • Is the cause of my hypoparathyroidism genetic?
    • If so, should my family be tested?
  • Do you have other patients with hypoparathyroidism?
SAVE TO PHOTOS

WHAT TO ASK YOUR DOCTOR ABOUT MANAGING YOUR CONDITION

  • What blood calcium level will you target for me?
  • How often will you check my blood calcium level?
  • What is the role of parathyroid hormone (PTH)?
  • What is the goal of treatment?
    • What are the long-term goals for me?
  • Why do I get neuromuscular symptoms? [for example, twitching, cramping, or abnormal excitability of nerves and muscles causing leg or arm spasms (tetany)]
  • What other types of symptoms should I watch for?
  • If I experience symptoms, what should I do to get my levels back under control? What are the signs that my symptoms require emergency attention?
  • If I have a severe reaction and need emergency care, what should I tell the emergency staff?
  • What is the importance of vitamin D, and what is activated vitamin D?
  • Is it necessary to monitor my phosphate and vitamin D levels?
  • Should I modify my diet?
SAVE TO PHOTOS

Support Groups


Provides online resources and organizes conferences to educate and support those touched by hypoparathyroidism.

Learn More


Works to improve the quality of life of thyroid cancer patients through education and research.

Learn More


Offers information about clinical trials and organizes events that support patients and families affected by hypoparathyroidism.

Learn More


Provides free support services, educational events, and thyroid cancer research grants.

Learn More

Shire provides funding to the above organizations in support of their efforts that include, but are not limited to, research, education, meetings/events, and patient support.

The PARADIGHM Patient Registry

Shire is a proud sponsor of PARADIGHM, a long-term study that collects data on hypoparathyroidism's impact to further understand its progression. Patients of any age or gender with a diagnosis of chronic hypoparathyroidism are eligible to enroll in the registry.

LEARN MORE

FIND AN ENDOCRINOLOGIST

The American Association of Clinical Endocrinologists provides a tool to help you find an endocrinologist in your area.

THE HYPOPARATHYROIDISM BROCHURE

This PDF provides, in printable form, much of the information presented on this site. Share it with your doctor and/or loved ones. The information in it provides a solid starting point for diagnosis and proactive treatment of this condition.